Evaluate the Quality of Life of Caregivers with Pediatric Neurological Disorder in Karachi (Cross-Sectional Study)

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Original abstract

Paediatric neurological disorder is defined as delays in the nervous system development in children can result from genetic disorders, injuries, infections, low oxygen levels, and neurotoxins. These disorders in children affect their physical, cognitive, memory, motor, and speech functions. The dysfunction can lead to complicated ongoing problems. Therefore, physicians, parents, and caregivers must understand these issues to manage them effectively. The purpose of this research was to assess the quality of life (QoL) of caregivers for children with neurological disorder. Across-sectional study will be conducted to evaluate the QoL of caregivers of children aged 1 to 10 years old who have this neurological disorder, using a Qol questionnaire’s. This study to explore the quality of life experienced by caregivers of individuals with paediatric neurological disorders and to examine how this affects their lives. The Cross-sectional study carried out 377 children with neurological disorders and their caregivers to assess the quality of life of those responsible for the children’s daily care. Data was collected from caregivers of children with down syndrome, delayed milestone, epilepsy, and cerebral palsy in various tertiary hospitals and rehabilitation centres in Karachi, using a standardized Quality of Life (QoL) questionnaire, to assess caregivers' quality of life and the impact of paediatric neurological disorders on their lives. The data was evaluated and analysed using the most recent SPSS version 26. Most caregivers had poor to moderate HRQoL (56% poor, 39.8% moderate). Cerebral palsy and epilepsy were the most common conditions. SF-30 results showed mild–moderate physical limitations and moderate emotional and social difficulties (Cronbach’s α = 0.751). Child age, caregiver marital status, and caregiver–child relationship significantly affected HRQoL, while other demographic and clinical factors showed no significant association. The study found that caregivers of children with neurological disorders in Karachi experience significant physical, emotional, and social burden, leading to poor quality of life—especially among mothers. Marital status and the caregiver–child relationship significantly affect caregiver well-being. The findings emphasize the need for better family support systems, improved rehabilitation and education services, and further research to develop effective family-centered interventions.    

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